Well, the 1st of July has rolled around and indeed we now have subsidised access to CGM for all people with T1 diabetes who are registered with NDSS!
Actually we cannot yet access product yet. We can now apply for access, which will start on the 15th of July. Or is it the 11th? (see below). As I’ve previously suggested, don’t think you’re going to get to the pharmacy today and order your new CGM sensors!
If you’re a current self-funded user, hopefully you have enough to get by for at least another fortnight.
Incidentally I could have said “all Australians” but some citizens are outside Australia. I could say “all people with T1D in Australia” except some people (e.g. non-citizens) are not eligible for Medicare/NDSS. So hopefully I’ve been as concise as possible.
Getting set up
There are a bunch of categories:
- For people already receiving CGM through NDSS (who will have been getting it for free) there is no change.
- People who have been self-funding CGM from the distributor in the first 5 months of 2022 can register online and be streamlined in. Hopefully by the 15th of July.
- People who were receiving CGM through NDSS but had to cease during 2022 (e.g. because they turned 21, no longer had concession status, or they were no longer pregnant) should automatically get resumption of supply. Hopefully by the 4th of July!
- Everyone else will have to contact their diabetes educator or endocrinologist who will have to complete the registration “paperwork” (I say “paperwork” although the registration can now be done by the HCP online).
Unfortunately people who had to cease their CGM Subsidy before 2022 will have to contact their HCP like everyone else (even though they would have gone through that process to get set up initially). Note that a GP is not sufficient.
We’re all hoping that the onboarding process is as smooth as possible for everyone. At least the streamlining of “recent”/current users onto the system without needing HCP involvement should help the whole system cope.
Sadly (for me) there are hiccups already, with the online forms not accepting the NDSS IDs of many people (myself included). I suspect this is a coding bug on their part relating to those of us who have old enough IDs to start with (several) leading 0s. The form strips off those digits when reporting that it’s apparently not valid. Hopefully this is resolved soon, and won’t delay the verification. Their phone support people will be busy otherwise…
[Midday EDIT: That particular bug has been fixed. And apparently now access to product might start on the 11th! ]
What it costs
$32.50 per month is the figure quoted, based on “the equivalent of one month’s supply based on the manufacturer’s recommended product lifespan”. The exact amounts we pay for a box vary dependent on the particular CGM product.
The packaging and lifespans it has to deal with are:
|CGM||Contains||Price per box|
|Libre 2||1 sensor per box, which should last 14 days.||$15.00|
|Dexcom G6||3 sensors per box, each should last 10 days.
|1 transmitter per box, which should last 3 months.||free|
|Medtronic Guardian 3||5 sensors per box, each should last 7 days.
|1 transmitter per box, which should last 12 months.||free|
|Medtronic Enlite||5 sensors per box, each should last 6 days.
There are of course quota controls in place, so we can’t just order everything in one go.
Multiplying the box price by 365/(number of days) in all cases comes out to either $390.55 or $391.07. Together each system was supposed to come to $32.50/month ($390/year), so that’s pretty close.
Now we get to watch the rollout progress. And roll on July 15th!